Question:
scoliosis operation help ????
2008-06-18 17:11:55 UTC
i was given a back brace but never wore it and my back got worse now its at a 40 angle and the doc sed i have to get a operation to straiten it in philly does any body know what procedure they are gonna do and everything about it and how long it takes to heal and if i have to wear a cast or take physical therapy or some helpfulllllllllll links yup .
Seven answers:
Scott B
2008-06-18 20:46:43 UTC
You probably won't need a cast or a brace. One of my fusions needed physical therapy and one didn't so I guess it depends on your specific case.



Long answer here. I'm giving you some info on the disease itself and then info on the hospital stay. Hope its not too boring for you.



I've posted the following a few times for other people with questions. I hope I'll answer the things that have you concerned.



Scoliosis comes mainly in two flavors - functional (the curve is caused by another issue (uneven leg length for example) and structural. There are two main kinds of structural scoliosis - congenital (present at birth) and idiopathic (unknown cause). It is important for you to know what kind you have.



If you have functional scoliosis, a chiropractor may be able to help. Shoe lifts may help with uneven legs, but there can be many causes of functional scoliosis. I don't have much experience with functional scoliosis.



If you have structural scoliosis, there's not a lot you can do. The main treatments depend on how bad the curve is and how much more growth you have to go. Its not possible to predict how much or how fast a curve may increase.



You need to see a scoliosis specialist if you're not doing that already. A doctor that is not trained as a scoliosis specialist doesn't have the expertise to treat it.



Any curve under 10 degrees is considered normal and probably isn't monitored.



Curves from 10-25 degrees are mild but should be monitored, especially if you're still growing.



Curves from 25-40 degrees are moderate with bracing possible. You will need monitoring, especially if you're still growing.



Surgery may be recommended if your curve doesn't respond to bracing. Bracing will do no good if you're through growing. The purpose of a brace isn't to make your curve better, but rather to keep the curve from becoming worse.



Curves greater than 45 degrees is major. Surgery may be recommended. This depends on many things, but whether you're done growing, whether your curve is increasing, whether your heart and lungs are in danger of being squeezed by your curve, whether you're in pain, quality of life, etc.



If your curve is over 30 degrees, there is a good chance that it will increase even when you're through growing. (Mine did.)



Unfortunately, nothing can *fix* idiopathic scoliosis. Surgery can keep the curve from getting worse, and in most cases, will reduce the curve but most likely your spine won't be straight (unless you are very flexible in the area to be fused, then you might be lucky).



Chiropractors, message therapists, acupuncturists, etc., can't fix idiopathic scoliosis. These people adjust the soft, connective tissues and that may (or may not, you can't tell ahead of time) make you feel better, but remember, idiopathic scoliosis is not a connective tissue disease. Your spine is growing curved.



I've posted the following a few times for other people with questions. I hope I'll answer the things that have you concerned.



Let me talk about the hospital stay.



You'll have meds to help with the pain. You'll start out with stronger meds and then wean yourself from them over time. So, yes, it does hurt, but you shouldn't be left hurting.



The size of your scar depends on how many vertebrae need fusing and the technique used to do the fusion. A four-level fusion will have a smaller scar than a 12-level fusion. Some surgeries (probably not yours) need both anterior and posterior (A/P, or front and back). Lastly, some people may be candidates for "minimally invasive" techniques. So, this is a hard question to answer without knowing more about your situation.



Your hospital stay will probably be between four and seven days. Teens typically heal quicker than adults and so their hospital stay is less.



As for what they do, each case is different. Here's one possible scenerio. Its incomplete as I'm describing things pretty quickly. The amount of time spent doing things will probably differ. Maybe even the order that things are done will differ. But it will give you kind of an idea of what happens. Just take it with a grain of salt.



You'll arrive at the hospital early to check in. You'll change into your gown and get an IV hooked up. You will talk to your nurse(s) and perhaps a couple of other staff members. You'll then get put to sleep (injected through the IV that you had put in earlier). The operation then happens. You'll wake up, probably in the ICU, but possibly in your hospital room. Probably on the first or second day after surgery, you'll be shown how to sit and then stand. You'll be able to take walks up and down the hallway but you'll tire quickly. Your IV will be removed in a couple of days as will the catheter you've had in you since the surgery. You'll be allowed to go home once your stomach starts rumbling, you're eating, and going to the bathroom. When you are in the hospital, your scar will be checked by a doctor each day.



You will feel like a truck ran you over for the first couple of days. Once your body starts to recover, you'll feel better.



When you wake up from surgery, your bed will have a machine that gives measured doses of pain meds (morphine or something as effective). You're self-medicating, so if you're hurting, just hit a button. The machine won't let you overdose yourself, though.



You'll be weaned off of the meds from the machine and given oxycontin (or the like). This is what you'll be taking for the first few weeks you're at home.



Bottom line is that you'll be hurting, but you'll be given pain meds to take care of the pain. They'll do the job for you.



It still takes two months to be doing basic things. You'll be cleared to do more things at six months. At one year, you'll be able to do about anything you could do before the surgery. Take it easy. This is major surgery. It takes a while for the spine to fuse.



There's a couple of things, off-topic, that will make life easier for you.



o Make sure you has a robe in case you gets up in the middle of the night when the house is colder. The surgery may mess up your body's temperature control.



o Get a toilet seat extender so that you don't have to squat as far. These also have handles and certainly made my life a lot easier. Since your chest muscles are fine, you'll be able to use them to raise and lower yourself.



o It might be nice to get a "grabber" which will help you pick things up from the floor.



o You may or may not have a walker when you get home from the hospital (probably not, but...). I did and discovered that I had to meneuver through the bathroom door sideways because the walker was too wide. This works, but it may be a bit more difficult.



o You will be sleeping an awful lot. This is a combination of your body needing rest and the pain meds knocking you out. Expect it.



o When I was in my bed, my wife made kind of a "nest" with pillows so I wouldn't roll out. I don't normally roll but I think it made both of us feel better. You might want to do the same.



o It will be helpful to sit in a chair with arms when you're having his meals and is sitting at the dining room table. Since your chest muscles are fine, you'll be able to use them to raise and lower yourself.



Please email me if you have questions.
Miss D
2008-06-19 19:17:51 UTC
Okay, firstly..your going to be FINE. i have scoliosis and was diagnosed with it when i was 12. i had the keyhole operation when i was 13. i had two curves both over/around the 60 degree mark, so my spine basically looked like the letter 'S'. its a pretty big operation and the whole process is pretty overwhelming. with my operation i had 5 small incisions going down my right side, starting just under my arm and going down. and another small incision just in a bit from that. the incisions down my side were for the surgeon to get the rod through to my spine and the incision which is more inwards was for a small tubular drain to be inserted. this was to drain any fluid from my lung. the operation involved one of my lungs being collapsed so that the spine was more accessible through the rib cage. even though i have two curves i only had one rod placed in the top section on the spine, in the hope that it would help straighten up the bottom as i grew. it has helped straighten the bottom aswell, however i still do have a slight curvature. one of the weirdest things was that i grew 1 and a half cm overnight once my spine was straightened. keep in mind that you are asleep during the whole procedure so it is not as bad as it seems. there are many people with this condition and my surgeon even contacted a few other people in my area who had operation done so i could hear there story and get more of a grasp on what was going on before i underwent surgery.



at the end of the day, this operation saved my life, as it was becoming hard to breathe with my spine starting to rub against my lungs and i would gladly have this operation done again if it was needed. it has helped me a great deal and i have had absolutely no problems since. i am now 19 years of age and am fully able to participate in any physical activity and am not limited by any means.



after the operation i had to wear a small back brace for three months and could not play and sort of sport for 9 months.



I hope this was helpful and i wish you the best of luck :) you'll be fine.
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2008-06-18 17:22:58 UTC
I have a 45 degree angle and then I have an angle going a different way. and My doctor told me to do exercises and psychical therapy for awhile. Not to have surgery so early in life. There are other ways to treat it and a 40 degree angle is considered moderate. 45 degrees or more is considered "severe".



Your doctor CANNOT make that decision for you.



I wouldn't go through with surgery. Not yet anyways. It's like a 78% chance it will go well. Sometimes people have had problems after wards that made it worse.



They have other options. I just exercise and do yoga and it helps some. They have spinal decompression (which people say works wonders) and also spinal fusion.



You should look into it further before you decide on what to do. My doctor told me that honestly surgery wouldn't be best for me at my age being that I'm only 20.



Messing with your spine is very serious and you don't want more complications along the way.



Good luck and if you do decide to do it, let me know if it helped!!
ilovemyairmanjay
2008-06-18 17:18:39 UTC
They are going to do a spinal fusion. The surgery takes 6-8 hours and you'll be in the hospital for a week. It takes a couple months to get back to normal. No you don't have to wear a cast. You'll just hurt like Hell. I had this done four years ago. I'm fine now. Your doctor will thoroughly go over everything with you.
blonde08
2008-06-18 17:33:08 UTC
i was told i had scoliosis years ago but they assured me that it wasnt anything to worry about (i didnt need a brace), that was until 1 1/2 years ago and the doctor bluntly told me i would quickly need surgery.

I had a 45 angle and growing, and my spine was also turning sideways so my ribs were brought over to my back. My nerves in my spine were being pinched and i would drop down in the middle of my softball games, so i had to quit.

I think the actual surgery took about 4 hours, but to me it felt like my eyes closed and opened and it was done. I stayed in the hospital for a week, but the time passed very quickly with all the drugs i was on. I wasn;t allood to have food for the next day because it would make me feel nauseous but the meds made me loose my appetite and they put the nutrition that i needed in my iv. I slept allott and i was propted in between pillows and they had to adjust me every like..2 hours, so i wouldnt get pnemonia.

I had medicine that i could press a button to put it in my iv, but it would only let me do it so much (still i got dependant) but i had to get myself not to put it in alot because once the dr. saw an improvement he would concider releasing me. Then there was also a shot that they diconnected my iv and put it in there, that hurt. Once i got home i had pills that i had to take so often, and i had to eat something with (i still didnt have an appetite, so that was a pain)

The only physical therapy i needed was before, but at the hospital i was assigned one to help me out of bed and get me walking again.

So i left a week after, was going shopping 2 weeks after (in a wheel chair) and swimming a month after. 3 months later the dr. signed a paper saying i could go on a plane and go to disneyland. 6 months later i was jumping on my trampoline. (although it hurts if i jump too long) . The recovery is going to be different for everyone. I still get pain every do often, so i have to realize what im capable of doing. But im starting yoga. Keep stretching.
2008-06-18 17:22:57 UTC
I know of 2 different ops for scoliosis,

1 is key hole surgery but I don't know much about that one, and the other is when they take bone from hip, and fuse it into the spine where there is a piece missing. And yes you'll need to wear a brace after. My daughter has this op when she was 5 and unfortunately it didn't work. I recommend that you google scoliosis, there is heaps of info on it
Freckles
2008-06-18 17:21:30 UTC
Surgery should be your last option, be carefull of the doctors, they make a lot of money from surgery, and prescribing meds.



You could try Pilates, try and get with a group that practices Pilates method from the Physical Mind Institute.



You could always try and look at some one that practices Feldenkrais Method. This helps you have mind body awareness, by giving you tools to work on improving your posture, and determining how it got worse.



Not sure about the surgical procedure, but i think it's quite invasive, and involves either putting a rod in your back and/or fusing discs.



Good look with everything xoxo


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